I can still see him on that day, not happy because the transport was late collecting him from Papworth. Angie the CF nurse who escorted him and us all sitting in the clinic waiting to see what the outcome would be. Mikey was so poorly but he was confident and was able to tell the consultant why it was so important to have the operation. The consultant had to check and discuss the case with the anaesthetist. He was on the phone for ages. Mikey was so incredibly strong even when the consultant was explaining the risks. Mikey told him that he had no choices, he was going to die if he didn't get the transplant and things were looking grim for him. Mikey also said, I'm at my wellest so its got to be now. The consultant told him that there was a risk that he would not make it through the operation, but Papworth had said that they felt he had a good chance. I can remember trying so hard not to cry and Mikey glaring at me. I guess he didn't want to see me upset and that he was finding it hard enough with out me causing a scene. Tim told the Dr that if it was up to him he would not agree to the operation because of the risk but that it wasn't his decision, it was Mikeys.
Mikey was so pleased that the Dr said he would do the operation, he was disappointed that he would have to have a full anaesthetic he hoped it could have been done by having a spinal anaesthetic. The stone was too big for that and too high up in the kidney. So it was that we left the hospital knowing the op would be in 6 days time!
Mikey went back on transport and Tim went back to see him later that evening.
We were to have our son for 6 more days. And so begins my memories of that time.
Enough for tonight, but tomorrow is another day
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